4 new projects that will help lower confusion about Ductal Carcinoma In Situ (DCIS)
Here is a guest post I wrote earlier this year for METAvivor called "How Do People Feel about Bone Marrow Exams?" It was based on a study with Bonnie King from Stanford. While this may be one of the more gruesome-sounding medical procedures that some patients go through, it is not necessarily unique. Too often, researchers think about all … Continue reading Patient Thoughts on Medical Tests for Research
I've been asked countless times to write about patients and clinical trials. Guess it's time to share what I've learned, along with other patient advocates, as we work beside researchers in the proverbial trenches. Just so happens that this post coincides with April Fool's Day - hope that's not an omen! Why this series? This is the first in … Continue reading Getting Real about Patients & Clinical Trials
Ever take a bunch of facts and turn them into something readable? For real people? From many dry scientific journals? When sources disagree? Vehemently? That is exactly what UCSF researchers Thea Tlsty, PhD, Philippe Gascard, PhD, and I did. Here is what we learned in order to help make sense out of a major worry for women. … Continue reading 6 Ways to Turn Data into a Good Read
Any body can have pain that needs to be eased. Unfortunately, US healthcare has created an epidemic of addicts instead. It's time to STOP this madness. Some are trying, but we all need to pitch in. Don't think you need this? Think again! In 2010, 1 out of 20 people over age 12 said they used a prescription … Continue reading Pain Meds – How NOT to Get Hooked
My favorite season! Thanks to those who supported our fundraiser at the Alliance for Clinical Trials In Oncology Foundation. More hand-crafted jewelry pictures available here. All content © 2015 by Deborah Collyar unless otherwise specified. All rights reserved. Permission is granted to use short quotes provided a link back to this page and proper … Continue reading Autumn Memories
When it's called "Ductal Carcinoma In Situ" - also known as DCIS, Stage 0 or pre-invasive breast cancer, and other names too. DCIS is confusing. Some call it an early form of breast cancer while others want 'carcinoma' taken out of the name because it is NOT cancer. The debate heated up (again), based on some new … Continue reading When is ‘Carcinoma’ not Cancer?