No, really. This is a real thing, created by money. Oops, I meant to say, created by researchers and institutions with MAJOR conflicts of interest. Why post it? Well, while this is the most blatant example we've seen in a long time, it happens every day, even to well-meaning researchers. FACT: research is a money game. … Continue reading Oops! Don’t Buy Chocolate Milk for Concussions
I've been asked countless times to write about patients and clinical trials. Guess it's time to share what I've learned, along with other patient advocates, as we work beside researchers in the proverbial trenches. Just so happens that this post coincides with April Fool's Day - hope that's not an omen! Why this series? This is the first in … Continue reading Getting Real about Patients & Clinical Trials
Well, it took me long enough to comment on this excellent serial report from @StevenBrill on @HuffingtonPost about drug company tactics. J&J/Janssen held back data about serious problems their drug caused while continuing to tout their "putting patients first" credo. Hmmm, does that mean "first to harm?" Thanks to https://chaoticpharmacology.com/ and @pharmagossip for kicking me in … Continue reading @pharmagossip: How Johnson & Johnson, promoted Risperdal illegally, covered up the side effects and made billions.
Ever take a bunch of facts and turn them into something readable? For real people? From many dry scientific journals? When sources disagree? Vehemently? That is exactly what UCSF researchers Thea Tlsty, PhD, Philippe Gascard, PhD, and I did. Here is what we learned in order to help make sense out of a major worry for women. … Continue reading 6 Ways to Turn Data into a Good Read
This was originally posted on December 9, 2014 for nFocus Solutions, which provides great data solutions for non-profits, government agencies, and communities. Check them out (after reading this post, of course)! Do you know what funders want most? They want tangible results they can see and understand. They also want to feel like they are part of … Continue reading 7 Ways to Keep Your Funders Excited
We will all be patients someday. Respect our contributions. Include us in decisions. Set real expectations. We are family. Forever. XO All content © 2016 by Deborah Collyar unless otherwise specified. All rights reserved. Permission is granted to use short quotes provided a link back to this page and proper attribution is given to me as … Continue reading We Are the Same
We learn about diseases and illnesses from research studies. Some focus on treatment (clinical trials), while others study groups of people (observational studies). Unfortunately, many studies are unclear, wrong, or can't be easily transferred into everyday medical practice. Study designs actually matter. They determine whether a research study helps real patients or just asks esoteric questions to further careers or … Continue reading How Do We Get Better Research Results?