Ever take a bunch of facts and turn them into something readable? For real people? From many dry scientific journals? When sources disagree? Vehemently? That is exactly what UCSF researchers Thea Tlsty, PhD, Philippe Gascard, PhD, and I did. Here is what we learned in order to help make sense out of a major worry for women. … Continue reading 6 Ways to Turn Data into a Good Read
This was originally posted on December 9, 2014 for nFocus Solutions, which provides great data solutions for non-profits, government agencies, and communities. Check them out (after reading this post, of course)! Do you know what funders want most? They want tangible results they can see and understand. They also want to feel like they are part of … Continue reading 7 Ways to Keep Your Funders Excited
We will all be patients someday. Respect our contributions. Include us in decisions. Set real expectations. We are family. Forever. XO All content © 2016 by Deborah Collyar unless otherwise specified. All rights reserved. Permission is granted to use short quotes provided a link back to this page and proper attribution is given to me as … Continue reading We Are the Same
We learn about diseases and illnesses from research studies. Some focus on treatment (clinical trials), while others study groups of people (observational studies). Unfortunately, many studies are unclear, wrong, or can't be easily transferred into everyday medical practice. Study designs actually matter. They determine whether a research study helps real patients or just asks esoteric questions to further careers or … Continue reading How Do We Get Better Research Results?
Something horrible happened - a clinical trial failed, causing one unexpected death and seriously injuring 5 people. And instead of dealing with a dysfunctional research system, “experts” are spouting off on their own. The few articles written to date focus on the drug (aka the money), not on what people want to know. My Initial Thoughts ClinicalTrialsArena asked … Continue reading A Clinical Trial Failed Patients
Welcome to the controversial world of dietary recommendations. Seriously, what do you do when you hear opposing stories about fat, cholesterol, carbs, supplements, etc.? Probably the same thing the experts do - expound on your own opinions and go get a snack! Debate from All Sides Criticism ignited over recent U.S. Dietary Guidelines (USDG), which diluted evidence that disagrees with long-held … Continue reading Quality Diet Research Needed