Patients Want Their Data Shared

Patients also want to be: Respected for their contributions to science and medical advances. Those contributions¬†include samples from their bodies (biospecimens), information (data), experiences (input), and sometimes their very lives. Protected from harm and misuse of sensitive data about themselves, their family, and/or their culture or ethnicity. As long as we are respected and protected, … Continue reading Patients Want Their Data Shared

Advertisements