Big words, yes, but we can still figure this out. I've learned a lot about this topic as a patient advocate on antibacterial drug development committees with the Clinical Trials Transformation Initiative (CTTI) and the Brookings Institution. It's really about the bug in the laboratory (lab), not in humans. That has to change if we want better solutions … Continue reading Antibiotic Resistance – It’s Complicated!
Any body can have pain that needs to be eased. Unfortunately, US healthcare has created an epidemic of addicts instead. It's time to STOP this madness. Some are trying, but we all need to pitch in. Don't think you need this? Think again! In 2010, 1 out of 20 people over age 12 said they used a prescription … Continue reading Pain Meds – How NOT to Get Hooked
Click here for useful tips on making public comments about the changes to informed consent before 12/7/15. EDIT: the public comment period has been extended - post your comments before 1/5/2016. More information in this blog post and at this website.
If not, you'll be surprised soon. The Common Rule is changing - 1st time since 1991. The US NIH NINR says, "The Common Rule contains regulations that protect individuals who participate in research and is followed by 18 federal agencies." Translation: these are the rules that apply to informed consent forms that patients sign to join research studies. Your … Continue reading Informed about Changes to Research Consents?
My favorite season! Thanks to those who supported our fundraiser at the Alliance for Clinical Trials In Oncology Foundation. More hand-crafted jewelry pictures available here. All content © 2015 by Deborah Collyar unless otherwise specified. All rights reserved. Permission is granted to use short quotes provided a link back to this page and proper … Continue reading Autumn Memories
When it's called "Ductal Carcinoma In Situ" - also known as DCIS, Stage 0 or pre-invasive breast cancer, and other names too. DCIS is confusing. Some call it an early form of breast cancer while others want 'carcinoma' taken out of the name because it is NOT cancer. The debate heated up (again), based on some new … Continue reading When is ‘Carcinoma’ not Cancer?