Keeping Patient Perspectives at the Forefront of DCIS Research

Thanks to Donna Pinto for a great summary of our activities at the 2017 San Antonio Breast Cancer Symposium (SABCS), and with the 2 amazing studies that we are both a part of: COMET & PRECISION! Let us know if you want more info. Thanks!

DCIS 411

Patient Advocates from across the US and around the world came together to share insights about DCIS at the 2017 San Antonio Breast Cancer Symposium.

The COMET Study Patient Leadership Team presented “Changing the DCIS Conversation: Development of an Alternative Discourse by Patient Advocate Stakeholders in the COMET Study.”

Advocates from the US, UK and the Netherlands highlighted their role as “partners” on PRECISION — “PREvent ductal Carcinoma In Situ Invasive Overtreatment Now.”

This international initiative was awarded Cancer Research UK’s Grand Challenge. Led by Dr. Jelle Wesseling of the Netherlands Cancer Institute, PRECISION aims to distinguish between lethal cancers that need treating, and non-lethal cancers that don’t.

Help keep patient perspectives at the forefront of DCIS research!  Join the conversation by commenting below or on social media!

• DCIS 411 Facebook
• Twitter @dcis411 
•  DCIS Support & Empowerment (Facebook Group)

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DCIS 411

Where are the studies of women (like me) who have taken a less aggressive path for “low-risk” DCIS? 

Until now — they didn’t exist.

Thanks to $13.4 million in funding from the Patient-Centered Outcomes Research Institute (PCORI), a long over-due clinical trial for DCIS has officially launched.

It’s called The COMET Study.

The goal is to learn if women with low-risk DCIS can avoid aggressive treatments and their physical and/or emotional side effects.

COMET stands for Comparison of Operative to Monitoring and Endocrine Therapy. It is a randomized prospective study that will enroll 1200 women at 100 cancer centers throughout the US.

My Role as a Patient Advocate

In 2016, I was invited to be one of four patient advocates on The COMET Study team.

We have enjoyed the opportunity to keep patient perspectives at the forefront of the study as well as this new website: www.dcisoptions.org

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